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Please - access the link below. In many parts of the world *medical* communities are celebrating the disappearance of Down Syndrome from our world. Iceland has almost eradicated children with down syndrome through a genetic testing module which…Continue
Does your parish have Adoration? Is it well attended? It seems to me that unless the pastor supports it, the devotion will not do well. My parish tried it about fifteen years ago. We had it every Friday from 9-5. It was like pulling teeth to…Continue
I have a younger child with autism and apraxia (I also have a teenager in high school), and I also help with her Special Ed CCD class. I am starting this discussion thread for any family that also has a child, teenager, adult with autism (anywhere…Continue
The United Nations, in 2012, set aside the 21st day of the 3rd month to recognize and celebrate all who identify with Trisomy 21, better known as Downs Syndrome.
Having a granddaughter who is identified with Downs has made our family not only more special than it already is, but more aware. Many people, when Teagen was born, said those identified with Downs identify closer to God's angels than with God's people on Earth. They do not harbor ill feelings towards anyone, unlike most. They do not feel jealousy, unlike most. They do not see evil in the world, unlike most.
Their guiding principle is one of fairness, gentleness, love, laughter, and peace. Would not the world be better off with more who identify with Downs than without? I…Continue
Breathe in deeply.
Over the last six weeks, what with pneumonia, then bronchitis, and menstrual flow for 22 days (and counting) I’ve been struggling. Being as small as I am (58 pounds) with a twisted torso from scoliosis and weakened respiratory muscles – oh, and that wh*** spinal-muscular-atrophy-never-walked-can’t-move-my-arms-anymore thing – everything is just harder. I thank God for the improvements, truly, deeply, and pray that no more difficulties may come – all the while knowing that there are so many people out there who have it so much worse.
And I’ve been thinking… Through the choking on mucus, pain and bleeding, shortness of breath… Don’t I believe in God’s will? I have prayed that only God’s Positive, Perfect, Holy, Ordained…Continue
I really cannot caption what the last few years have been like.
I worked in three jobs in two different fields in the past three years and left all of them. I went back to school, and am nearly finished, about to enter a now-uncertain industry.
My younger daughter had a major health crisis, which led to my pulling her out of traditional brick/mortar school and enrolling her in an online homeschool (working very well for her). That led to me quitting my job and staying home with her to manage her homeschooling, which had the ripple effect of other life changes. (Who becomes a stay-at-home mom to a middle-schooler and a high school senior? No one. It's depressing and unheard of. Unless your middler schooler has special needs and then it's even more isolating.)
My older daughter is a graduating high school senior and is preparing for college and trying to job-hunt in a job market designed for older people working 60 hour weeks.
I'm in my mid-40s and life…Continue
“Commit your life to the Lord, and He will help you” is a favorite refrain of mine, one of His many promises to us. For many though the question is not so much ‘will I commit’, but ‘how can I commit’?
It is difficult in today’s world to commit one’s life to the Lord. Most have family obligations, work obligations, health issues, children/grandchildren issues. And lest we forget any of these obligations, technology bombards our ears and eyes with beeps, blinks, chimes and even shouts out, as is the case with our new home’s fire alarm, “Evacuate, evacuate, alert alert, evacuate!”.
We are actually being Techno-scolded constantly by inanimate objects demanding our attention. And, the noise is deafening!
How many of us become so busy we forget food placed in the microwave and only remember when the DONE beep continues on and on and on? Or the refrigerator’s chimes when the doors are open too long. This is very irritating when you…Continue
Life is fragile. All of life on earth must come to an end. And there are thousands of ways in which the mind and body can be tortured. Suffering is very real.
And yet, I say, life is beautiful.
Most of 2017 has been very difficult for me so far. An ambulance came for me on the ninth and I was admitted to the hospital with pneumonia. Breathing takes extra effort for me anyway, with my little crippled up body, my torso twisted and deformed by severe scoliosis, my muscles weakened by my motor neuron disease – add an infection with lung inflammation to that and the act of breathing becomes the main focus of every waking moment. Thank God, the pneumonia cleared quickly and I was released from the hospital on the…Continue